Posts Tagged ‘IDSA’

‘My Lyme Disease Is Not The IDSA Lyme Disease’ Responses

// December 13th, 2010 // No Comments » // Links To Other Lyme Site Posts, Lyme Media, LymeBites Blog

Last week Ashley wrote her response to the disparaging article written in the Chicago Tribune about Chronic Lyme Disease as well as the doctors who treat with long term antibiotics.  She titled it ‘My Lyme Disease is Not the IDSA Lyme Disease’ and urged us to follow her lead with our own replies.

Later that day I had my own response finished and posted here on LymeBites.  Since that time there have been at least 11 bloggers and patients responding to the article with their Lyme disease versus the IDSA Lyme disease portrayed in this article.  Here’s a list of the responses posted so far.  A truly amazing job by these writers in showing the other side of this disease.

Ashley – My Lyme Disease Is Not The IDSA Lyme Disease
Eric – My Lyme Disease Is Not The IDSA Lyme Disease
Molly – My Lyme Disease Is Not The IDSA Lyme Disease
Andrew – My Lyme Disease Is Not The IDSA Lyme Disease
Kenneth – My Lyme Disease Is Not The IDSA Lyme Disease
Alix – My Lyme Disease Is Not The IDSA Lyme Disease
Brooke – My Lyme Disease Is Not The IDSA Lyme Disease
Kim – My Lyme Disease Is Not The IDSA Lyme Disease
Candice – My Lyme Disease Is Not The IDSA Lyme Disease
Alyson – My Lyme Disease Is Not The IDSA Lyme Disease
Heather – My Lyme Disease Is Not The IDSA Lyme Disease
Kim T – My Lyme Disease Is Not The IDSA Lyme Diseasse
Planet Thrive – My Lyme Disease Is Not The IDSA Lyme Diseasae
Sharon – My Lyme Disease Is Not The IDSA Lyme Disease
Six Goofy Kids – My Lyme Disease Is Not The IDSA Lyme Disease
Marla – My Lyme Disease Is Not The IDSA Lyme Disease
Dawn – My Lyme Disease Is Not The IDSA Lyme Disease
Joanne – My Lyme Disease Is Not The IDSA Lyme Disease
Five Lymies and a Baby – My Lyme Disease Is Not The IDSA Lyme Disease
Jenna – My Lyme Disease Is Not The IDSA Lyme Disease

IDSA – Idiots Don’t Stop Activism

// April 22nd, 2010 // 2 Comments » // LymeBites Blog

I don’t really know why I’m actually writing this post, I seem unable to pinpoint a specific topic.  But I’m really pissed off today.  I’m very angry.  But I’m too weak to do anything appropriate with that anger but cry. 

So instead I write.  Here’s some of what’s going on in my mind:

Today the IDSA released the fact that they will NOT be changing their Lyme disease guidelines.  For those new to the controversy, the Infectious Diseases Society of America (IDSA) authored the guidelines that doctors and insurance companies follow.  In 2006 they said Lyme is hard to get, easy to cure, no more than 10-14 days of antibiotics is necessary to treat this disease, and that chronic Lyme disease does not exist (among other things). 

Connecticut’s Attorney General began an investigation where it was found there were conflicts of interest with the authors and  the insurance/vaccine companies etc.  (For more information google it, I won’t bore you all with the details today.)

The IDSA was told to reissue the guidelines by Dec 31, 2009.  Almost 4 months later they finally got around to it, changing nothing.  I haven’t even read the final release because it makes me so angry. 

My insurance company is denying my care now because of these guidelines.  So it’s more than just what is morally correct in my mind, it has a literal effect on my treatment , my recovery and my bank accounts.  It’s definitely a blow to me personally, as well as thousands and thousands of other individuals now, and in the future.  But in a way, they just added fuel to a fire of really pissed off people who have been given the runaround by a corrupt system. 

I’m not going to get all political or start pointing fingers…I don’t think I really need to, we all know where to point the fingers, and most of us know which finger to use.