May is Lyme Disease Awareness month. If you’ve not yet seen it, please view UNDER OUR SKIN. This documentary shows the truth about Lyme disease. See it, recommend it, pass along your copy! You can also view the public service announcements linked to our website. Very informative. And we are still taking Messages of Hope. To submit yours, please contact firstname.lastname@example.org.
Archive for May is Lyme Disease Awareness Month
Thanks to so many people for your wonderful messages of hope and for your enthusiasm for the LymeBites Messages of Hope video. While we were intending to roll it out today, we’ve had some unforeseen issues arise and will have to delay the launch briefly. Thank you for your patience. In the meantime, if anyone has any messages they would like to add, please send them to email@example.com! Thank you.
Ginger and the LymeBites Team
May is Lyme Disease Awareness month and on May 7th, LymeBites will be unveiling Messages of Hope,
a video of inspiration for those suffering with this disease.
Please join us in this collaboration by submitting your own written message of hope to show
your support and share your strength. If you are comfortable, please
include your name (or initials or nickname-whatever is your
preference) and at least a general location.
Submissions are due by Friday, May 4th. For any questions and to submit your
message of hope, please contact Ginger Schwartz at
All submitted written Messages of Hope will be published on May 7th along
with the video.
Thank you for helping to get the
word out and showing your support for the Lyme community!
Jame Richards, award winning author of the recently released Three Rivers Rising: A Novel of The Johnstown Flood recently released a statement on Lyme disease. Imagine we are all very famous people, the type of situation that would call for us to “make a statement” about something. That’s pretty much what it’s like. Except not really at all, it’s more like she’s a dear friend who wanted to help out with our Paint May Lyme Green campaign, and as we close out the month of May campaign she said this about her own bout with Lyme disease, as well as a warning for others:
“I’ve taken ticks off my husband and both my children, yet I’m the one who had Lyme. I never saw a tick on me, never had a rash. I was lucky to catch it early, only because I noticed a strange sensation in my hands and feet, like edema but without the swelling. But there must be as many different Lyme symptoms and scenarios as there are cases of Lyme: I would urge people to be conscious of unexplained sensations, random fevers, joint pain, etc. Be mindful AND get tested!”
Not only is Jame a great author, she’s also a great friend of mine. She has watched as my journey with Lyme disease began, and how it has continued. She has seen the struggle I’ve had before me to get the care that I need, and when I found that care, how I had to spend every last dollar I had to pay for it. So while for some in the medical community there may be a question as to whether Chronic Lyme Disease exists or not, Jame can tell you it does:
“If Lyme disease doesn’t really exist, and is just a fabrication on the part of people who are lazy and want to get out of working, explain why my friend Eric works tirelessly, longer hours than most people, to raise awareness about the disease and its prevention. And wedged in between, he pursues medical care, alternative treatments and ever-elusive relief from the debilitating pain he suffers every moment of every day. Eric, a vibrant, energetic guy who enjoyed his career and spending time with loved ones, was plucked from his own life by Lyme, reduced to an assortment of agonizing symptoms and the malfunction of one bodily system after another after another. Yet Eric gathers what dignity remains to fight on in spite of the pain, to unite Lyme sufferers, and to educate and protect the rest of us from a similar fate.
And yet, some would say Eric chose this path. Chose to give up his job, his home and every last cent in his bank account? Chose to fill his days with pills and injections, brain fog and memory lapses? And fill his mostly-sleepless nights with sweats, terrors, worry and sitcom reruns? Though Eric is someone who has the courage to walk a difficult path, to overcome obstacles and persevere, you could never convince me that he has chosen chronic illness, or that his experience is anything less than genuine.”
Thank you so much Jame on behalf of all of those who suffer with Lyme Disease for your powerful words. We appreciate so much those who stand up with courage to defend us, many of whom are too sick to stand and defend themselves.
Most of you out there with Lyme disease, or who have heard me complain through the last year of my own Lyme disease are probably thinking “is he having a stroke, or did he really just say that?” No, I am not having a stroke. But I am having a stroke of genius. Okay, not so much genius as at least an idea.
Alyssa Knapp of Food For Lyme wrote an amazing piece tonight on the end of Lyme Disease Awareness Month. Part of what has been mentioned in the comments to that article is how many new friends we’ve made through this Lyme awareness campaign.
As much as I hate my Lyme disease, I can’t imagine my life without some of the people that have entered it through the Lyme disease portal. I never would have been able to meet so many people from all over the world, let alone half the people in my own neighborhood that I’ve met through this campaign.
And let me tell you, there are some pretty damn amazing people that have worked hard on this campaign, and it is truly a blessing to know them, and to have worked with them. But more than that, the hundreds and thousands of people who have joined us in spreading awareness. Most I’ve never met in person, but I love them and depend on them as if they were friends for years. Part of this disease is isolation. You cannot begin to understand the isolation someone with Lyme disease feels. Especially without the support of their own family and friends. So to be able to come together as a group like this, and feel unending support and understanding of what we go through can be pretty powerful.
So yet another silver lining to the dark cloud that is Lyme disease. The wonderful people who become part of the community that help to brighten our often dark journeys.
Alyssa will be guest writing this weekend and including the post I referenced, so please be sure to come back and check it out. It will bring a tear to your eye and pride to your heart at all that we’ve been able to and how we’ve grown as a community.