Original post about this symposium: http://lymebites.com/a-forum-on-tick-borne-diseases-whats-next/Itinerary:Schedule ~ Please note that all times are approximateArthur Zankel Music Center9:00 Morning Session Opens Christina T. Fisk, Co-Chair Organizing CommitteeWelcome to LymeNEXT Congressman Chris Gibson, 20th Congressional District, NY9:15 Keynote AddressInto the Woods: The Patient Journey through Lyme DiseasePamela Weintraub, Executive Editor, Discover Magazine and author of Cure Unknown: Inside the Lyme Epidemic10:00 The Scope and Economic Burden of Lyme DiseaseAn Epidemic of Lyme Disease? Holly AhernThe Economic Impact and Burden of Lyme Disease Lorraine Johnson11:00 Break11:15 A Diagnosis that Fits the Disease – Multiple Chronic Infectious Disease Syndrome (MCIDS) Richard I. Horowitz, MDNoon Lunch BreakAn optional one-price ($10) dining option is available for Forum attendees. Lunch will be held in the Murray-Aikins Dining Hall on the Skidmore Campus. See program for menu.1:20 Afternoon Session Opens Christina T. Fisk, Co-Chair Organizing Committee1:30 Protecting Physicians who Treat Lyme Disease Daniel Cameron, MD2:00 Preventing Transfusion-Transmitted Babesiosis David Leiby, PhD2:30 Break2:45 New Methods for Lyme and TBD Detection Ahmed Kilani, PhD3:15 A “Manhattan Project” for Lyme Disease Kenneth Liegner, MD4:00 Closing Remarks Congressman Chris GibsonA Forum on Tick-Borne Diseases – What’s NEXT?Skidmore College Saratoga Springs, New YorkMay 21, 2012Honorary Chairman: Congressman Chris Gibson
LIVE VIDEO STREAMINGHonorary Chairman Congressman Chris Gibson (NY-20) and the LymeNext Organizing Committee invite all individuals, communities, organizations, or enterprises with interests pertaining to Lyme disease and other tick-borne diseases to join the Congressman for a unique public forum he will be hosting in the Zankel Music Center, Skidmore College in Saratoga Springs, New York, on May 21, 2012 from 8:00 am to 5:00pm.
The Lyme Next Forum will be broadcast live over the Internet this Monday starting at 9:00 am. The website you need to go to is:A link to this and detailed information is also available at the Lyme Forum website:
Archive for Lyme Media
A Forum on Tick-Borne Diseases – What’s NEXT?
Skidmore College Saratoga Springs, New York May 21, 2012
Honorary Chairman: Congressman Chris Gibson
Please forward this invitation (4/6/12)
A Special Invitation
Congressman Chris Gibson (NY-20) invites all individuals, communities, organizations, or enterprises with interests pertaining to Lyme disease and other tick-borne diseases to join him for a unique public forum he will be hosting in the Zankel Music Center, Skidmore College in Saratoga Springs, New York, on May 21, 2012 from 8:00 am to 5:00pm.
The event, entitled A Forum on Tick-Borne Diseases – What’s NEXT? seeks to focus public awareness on the future of these difficult diseases. A group of speakers, leaders in their fields, will present forward thinking, problem-solving proposals to a panel of policymakers from both private and public sectors about what can reasonably happen NEXT to advance the cause of improving the lives of people suffering with Lyme disease and other TBDs.
Pamela Weintraub, renowned author of Cure Unknown, and Executive Editor of Discover, will be the keynote speaker for this event. Pam will speak to the multi-dimensional nature of this extraordinary subject, from the patients to the politics, from the science to suppositions that define this stunning medical debacle.
Dr. Richard Horowitz, internationally renowned clinical physician and consultant in the field of Lyme and tick-borne diseases has been working with patients for over twenty years. He has seen the evolution of the diseases from the clinical perspective, and will present a proposal for a paradigm-shifting approach to the diseases that could encourage new perspectives, new synergies, and new research in this difficult subject.
Dr. Daniel Cameron, former President of the International Lyme and Associated Diseases Society, an active clinical physician, researcher, and vocal advocate for Lyme patients and improved Lyme policy in the U.S., Dr. Cameron will speak to the extreme difficulties the current medico-political environment imposes on the doctors who aggressively treat Lyme disease.
Dr. Kenneth Liegner, Dr. Liegner is a Board Certified Internist with additional training in Pathology and Critical Care Medicine, practicing in Pawling, New York. He has been actively involved in diagnosis and treatment of Lyme disease and related disorders since 1988. Dr. Liegner will present his ideas for a comprehensive plan for dealing with the spectrum of problems that are the “Lyme issue” as we move into the future.
Lorraine Johnson, J.D., MBA, one of the best known and most highly regarded advocates for Lyme patients, is an attorney advocate on issues related to the medico-legal and ethical aspects of Lyme disease and has published over 30 peer-reviewed articles on this topic. She is the Chief Executive Officer of LymeDisease.org, and is a director and an officer of the International Lyme and Associated Diseases Society. She will speak on the Burden of Illness, an in-depth study of what the costs are to people who have Lyme and other tick-borne diseases and to their communities, and she will recommend research paths forward to address these issues. Lorraine authors the Lyme Policy Wonk blog, on the lymedisease.org site.
Holly Ahern, associate professor of Microbiology at SUNY Adirondack, will present the findings of her 2011 research study on the number of cases of Lyme disease that go uncounted in our “official” statistics. Most cases of Lyme disease are NOT reported, and this number of “invisible” cases, will ultimately have a significant impact on all our communities. Multiplying the “undocumented” cases with the financial burdens of the disease foreshadows a public health crisis on the horizon.
Dr. Ahmed Kilani, President, Founder, and Director of Clongen Labs, will discuss new laboratory methods to enhance the detection sensitivity ini the testing process.
Dr. David Leiby, Head of Transmissable Diseases at the Red Cross, will speak on the concerning and challenging issue of Babesiosis now being found in the blood supply.
Dr. Edward Breitschwerdt, DVM, of North Carolina State University, will address the emerging challenges of Bartonella, one of the co-infections that is being observed with increasing frequency.
Lyme victims, their families and friends, advocacy groups, medical professionals, business professionals, government agencies, policy makers, and others associated with these diseases or their impact on people are urged to attend to both hear what the speakers are proposing as well as to demonstrate to the public, to government, and to the media that there are a LOT of victims of tick-borne diseases.
There is no cost to attend the forum. Information about how to pre-register and about accommodations can be found at www.lymenext.org.
I probably should have posted about this BEFORE he did the show on Friday the 13th (really…that’s a good thing) covering Lyme disease. I’m posting about it now because he said he knew it would be a big thing on Facebook and Twitter and the Internet. So let’s prove him right, and thank him first of all for addressing such a tough and controversial issue. And secondly, to ask him to do follow up shows.
If you missed the show, it was aired on the 4/13/12 (in case you want to order the DVD or look for it on other channels). I’m including a link where you can see 4 YouTube clips of the episode, as well as ways to leave messages asking for a couple forms of follow up. If you could take a few minutes out of your day to help me, and the hundreds of thousands of others like me around the world it would mean so much to us, so much more than you can imagine the difference your few minutes can make.
I am copying and pasting this directly from Facebook and at the end will include the link for the Dr. Phil website:
This is a major breakthrough for Lyme Disease Awareness. Please, Please, Please, watch the following … and post on the message boards thanking THE DOCTOR PHIL SHOW and asking for follow up shows!!!!
Last week Ashley wrote her response to the disparaging article written in the Chicago Tribune about Chronic Lyme Disease as well as the doctors who treat with long term antibiotics. She titled it ‘My Lyme Disease is Not the IDSA Lyme Disease’ and urged us to follow her lead with our own replies.
Later that day I had my own response finished and posted here on LymeBites. Since that time there have been at least 11 bloggers and patients responding to the article with their Lyme disease versus the IDSA Lyme disease portrayed in this article. Here’s a list of the responses posted so far. A truly amazing job by these writers in showing the other side of this disease.
Ashley – My Lyme Disease Is Not The IDSA Lyme Disease
Eric – My Lyme Disease Is Not The IDSA Lyme Disease
Molly – My Lyme Disease Is Not The IDSA Lyme Disease
Andrew – My Lyme Disease Is Not The IDSA Lyme Disease
Kenneth – My Lyme Disease Is Not The IDSA Lyme Disease
Alix – My Lyme Disease Is Not The IDSA Lyme Disease
Brooke – My Lyme Disease Is Not The IDSA Lyme Disease
Kim – My Lyme Disease Is Not The IDSA Lyme Disease
Candice – My Lyme Disease Is Not The IDSA Lyme Disease
Alyson – My Lyme Disease Is Not The IDSA Lyme Disease
Heather – My Lyme Disease Is Not The IDSA Lyme Disease
Kim T – My Lyme Disease Is Not The IDSA Lyme Diseasse
Planet Thrive – My Lyme Disease Is Not The IDSA Lyme Diseasae
Sharon – My Lyme Disease Is Not The IDSA Lyme Disease
Six Goofy Kids – My Lyme Disease Is Not The IDSA Lyme Disease
Marla – My Lyme Disease Is Not The IDSA Lyme Disease
Dawn – My Lyme Disease Is Not The IDSA Lyme Disease
Joanne – My Lyme Disease Is Not The IDSA Lyme Disease
Five Lymies and a Baby – My Lyme Disease Is Not The IDSA Lyme Disease
Jenna – My Lyme Disease Is Not The IDSA Lyme Disease