Archive for Links To Other Lyme Site Posts

‘My Lyme Disease Is Not The IDSA Lyme Disease’ Responses

// December 13th, 2010 // No Comments » // Links To Other Lyme Site Posts, Lyme Media, LymeBites Blog

Last week Ashley wrote her response to the disparaging article written in the Chicago Tribune about Chronic Lyme Disease as well as the doctors who treat with long term antibiotics.  She titled it ‘My Lyme Disease is Not the IDSA Lyme Disease’ and urged us to follow her lead with our own replies.

Later that day I had my own response finished and posted here on LymeBites.  Since that time there have been at least 11 bloggers and patients responding to the article with their Lyme disease versus the IDSA Lyme disease portrayed in this article.  Here’s a list of the responses posted so far.  A truly amazing job by these writers in showing the other side of this disease.

Ashley – My Lyme Disease Is Not The IDSA Lyme Disease
Eric – My Lyme Disease Is Not The IDSA Lyme Disease
Molly – My Lyme Disease Is Not The IDSA Lyme Disease
Andrew – My Lyme Disease Is Not The IDSA Lyme Disease
Kenneth – My Lyme Disease Is Not The IDSA Lyme Disease
Alix – My Lyme Disease Is Not The IDSA Lyme Disease
Brooke – My Lyme Disease Is Not The IDSA Lyme Disease
Kim – My Lyme Disease Is Not The IDSA Lyme Disease
Candice – My Lyme Disease Is Not The IDSA Lyme Disease
Alyson – My Lyme Disease Is Not The IDSA Lyme Disease
Heather – My Lyme Disease Is Not The IDSA Lyme Disease
Kim T – My Lyme Disease Is Not The IDSA Lyme Diseasse
Planet Thrive – My Lyme Disease Is Not The IDSA Lyme Diseasae
Sharon – My Lyme Disease Is Not The IDSA Lyme Disease
Six Goofy Kids – My Lyme Disease Is Not The IDSA Lyme Disease
Marla – My Lyme Disease Is Not The IDSA Lyme Disease
Dawn – My Lyme Disease Is Not The IDSA Lyme Disease
Joanne – My Lyme Disease Is Not The IDSA Lyme Disease
Five Lymies and a Baby – My Lyme Disease Is Not The IDSA Lyme Disease
Jenna – My Lyme Disease Is Not The IDSA Lyme Disease


// December 2nd, 2010 // No Comments » // Ashley's Blog, Links To Other Lyme Site Posts, Re-Posts,

Ehrlichiosis (HME) was originally thought to be only an animal disease. It was described in humans in 1987 and is now found in 30 states, predominately in the southeast, south-central, and mid-Atlantic states, Europe and Africa. Anaplasmosis (HGE)in humans was first identified in 1990 in a Wisconsin man. Before that it was known to infect horses, sheep, cattle, dogs and cats. It occurs in the upper midwest, northeast, the mid-Atlantic states, northern California, and many parts of Europe. Studies suggest that in endemic areas as much as 15% to 36% of the population has been infected, though often it is not recognized. (1)

Diagnosis is limited by our current ability to test for only two species. Ehrlichia parasites multiply inside host cells, forming large mulberry-shaped clusters called morulae which doctors can sometimes see on blood smears. The infection still can easily be missed. The doctor may suspect ehrlichiosis/anaplasmosis in a patient who does not respond well to treatment for Lyme disease. (1)

Ehrlichiosis is caused by bacteria that belong to the family called Rickettsiae. Rickettsial bacteria cause a number of serious diseases worldwide, including Rocky Mountain spotted fever and typhus. All of these diseases are spread to humans by a tick, flea, or mite bite.

Ehrlichia bacteria can be carried by the Lone Star tick, the American dog tick, and the deer tick, which can also cause Lyme disease. (2)

There are two kinds of ehrlichiosis, both of which are caused by tick-borne rickettsial parasites called Ehrlichia that infect different kinds of white blood cells. In HME (human monocytic ehrlichiosis), they infect monocytes. In HGE (human granulocytic ehrlichiosis), they infect granulocytes. HGE was renamed anaplasmosis in 2003. Ticks carry many Ehrlichia-like parasites that have not been identified yet. It is likely that the lone star tick transmits HME and that the deer tick transmits HGE. (1)

Not every individual tick is infected with the bacteria, so a tick bite does not automatically result in illness. It usually takes 24 to 36 hours for an infected feeding tick to transmit the ehrlichiosis-causing bacteria to its host. (3)

The symptoms of ehrlichiosis usually appear about a week after someone has been bitten by an infected tick. However, it is also common for ehrlichiosis to have very mild symptoms or even no symptoms at all. The only way to conclusively diagnose ehrlichiosis is through a blood test. The good news is that this disease is usually resolved by the immune system and requires no medical treatment. (3)

For people who have compromised or weak immune systems, such as very young children, the elderly or those with autoimmune deficiency diseases, ehrlichiosis can become very serious or fatal if left untreated. When the immune system is unable to effectively fight bacteria, the bacteria are able to multiply quickly and overwhelm the body. (3)

Treatments include-
Doxycycline, minocycline, tetracycline, rifampin and zithromax

Symptoms include-
profound fatigue
sever muscle pain
high liver enzymes
low white blood cell count
severe headaches
flat red rash
joint pain
low platelet count
kidney failure
respiratory insufficiency




This Disease Called Lyme


// November 30th, 2010 // 3 Comments » // Ashley's Blog, Links To Other Lyme Site Posts, Re-Posts,

Bartonella is a bacterium that causes illness, the most commonly known of which is a disease called “Cat Scratch Fever.” Thousands of known cases of Bartonella occur in the U.S. each Year, with the vast majority of known cases due to bites from fleas that infest cats or infected dogs (may also occur directly from bites and scratches from infected dogs or cats). Bartonella can also be transmitted by ticks that transmit Lyme Disease. In fact, in a study published recently, deer ticks from New Jersey had a higher prevalence of Bartonella organisms than of Lyme organisms. (1)

It is unclear whether the organism that we see transmitted along with Lyme disease is actually a Bartonella species (such as B. henselae or B. quintana) or is “Bartonella-Like Organism” (BLO) that is yet to be fully identified. While BLO has features similar to organisms in the Bartonella family, it also has features slimiar to the Mycoplasma and the Francisella (causes tularemia) families. (1)

It has been said that Bartonella is the most common of all tick-borne pathogens. Indeed, there seems to be a fairly distinct clinical syndrome when this type of organism is present in the chronic Lyme patient. However, several aspect of this infection seem to indicate that this tick-associated strain of Bartonella is different from that described as “cat scratch disease”. For example, in patients who fit the clinical picture, standard Bartonella blood testing in commonly non-reactive. Furthermore, the usual Bartonella medications do not work for this- they suppress the symptoms but do not permanently clear them. For these reasons I (Dr Burrascano) like to refer to this as a “Bartonella-like organism” (BLO), rather than assume it is a more common species. (2)

Incidentally, animal studies show that Bartonella may be transmitted across the placenta. No human studies have been done. (2)

Bartonellosis is often mild but in serious cases it can affect the whole body. Early signs are fever, fatigue, headache, poor appetite, and an unusual, streaked rash. Swollen glands are typical, especially around the head, neck and arms. Burrascano suspects bartonellosis when neurologic symptoms are out of proportion to the other systemic symptoms of chronic Lyme. He also notes gastritis, lower abdominal pain, sore soles, and tender subcutaneous nodules along the extremities. Lymph nodes may be enlarged and the throat can be sore. (3)

Bartonella are bacteria that live inside cells; they can infect humans, mammals, and a wide range of wild animals. Not all Bartonella species cause disease in humans. Bartonella henselae causes an important emerging infection first reported in 1990 and described as a new species in 1992. It is mainly carried by cats and causes cat-scratch disease, endocarditis, and several other serious diseases in humans. (3)

Bartonella bacteria are known to be carried by fleas, body lice and ticks. Scientists suspect that ticks are a source of infection in some human cases of bartonellosis. People with tick bites and no known exposure to cats have acquired the disease. People who recall being bitten by ticks have been co-infected with Lyme and Bartonella. More research needs to be done to establish the role of ticks in spreading the disease. (3)

Babesia and Bartonella are not little addendums to Lyme disease, but are often far more serious than Lyme disease. Any physician who is not well-versed in these two killing infections perhaps should not be considered competent enough to treat patients with flea and tick infections. These infections do not circle around planet “Lyme” like small moons, instead, they are their own huge planets that cause massive consequences to the human body. (4)

In my experience (Dr. Schaller), Bartonella is profoundly agitating and causes all possible psychiatric troubles. Some patients feel like they have gasoline in their veins and are highly reactive and grossly sensitive. I also believe Babesia and Lyme disease, to a lesser extent, can also cause very diverse psychiatric troubles. (5)

It is important to realize that Bartonella is not rare. It is all over the world and only those living in the polar ice caps are immune to the risk of infection. I (Dr. Schaller) personally believe based on newer and more aggressive testing that it is more common than Lyme disease. Many are falsely diagnosed with Babesia because they are tired and fatigued, and yet this is a highly common symptom of Bartonella reported in vast numbers of studies. It is a major contributing infection to chronic fatigue and Fibromyalgia symptom clusters. (6)

You should appreciate that it is unlikely you will ever be cured of Lyme in the presence of Bartonella. Why? Bartonella is a massive immune suppressing bacteria. It can float attached to Red Blood Cells in vast numbers and not even cause a cold or fever. Just imagine, bacteria are floating in your blood and you might not have any fever at all! If you had Staph or Strep in your blood at these levels you would likely be dead in 48 hours unless you were pumped full of antibiotics in an ICU. So how is it this huge elephant floats in vast numbers and causes no severe fever and no disastrous signs of deadly sepsis—infected blood throughout the body with massive inflammation. It is because it has ways of shutting down the immune system. It violates many rules of bacteria behavior and this is one reason it has been so seriously missed until recent years. (6)

Treatments include-
ceftin, ciprofloxacin, mycobutin, levaqin, septra, doxycycline, omnicet, cumanda, clove bud oil, houttuynia, banderol

ice pick like headaches
reflex sympathetic dystorphy
cardiac problems
gut problems
plantar fascial pain
burning pain
night sweats
weight loss
neurological symptoms
foot pain, sore soles
enlarged lymph nodes
rash that looks like red or purple stretch marks PHOTOS
cold hands and feet
intestinal infection
blood thinkening
sore throat
lower abdominal pain

Related Posts-


Transdermal Magnesium

// June 15th, 2010 // No Comments » // Links To Other Lyme Site Posts,

Back in March I wrote a post about Magnesium- MAGNESIUM, FRIEND OR FOE. I wrote about the importance of maintaining adequate magnesium levels and the debate about whether or not Lymies should be supplementing magnesium when Magnesium is one of the building blocks of biofilms and the concern is magnesium may be helping Lyme to thrive in your body.

In the original post I did not delve into what kind of magnesium to take or how to take it.

After the post a company that sells a product line called Ancient Minerals contacted me. They have a range of topical magnesium products and they asked if I would like to try it and write a review. I of course accepted and went straight to the internet to read up on transdermal magnesium supplementation.

There are quite a few doctors that recommend transdermal vs. oral supplementation and not just when it comes to magnesium. (1)

Magnesium chloride, when supplied in sufficient quantities, can kick start cell physiology in a very powerful way. Few know that magnesium chloride is an impressive infection fighter and even fewer know that the best way to deliver magnesium to all the cells is through the skin. -Mark Sircus, Ac., OMD (2)

One of the first things I learned was that my believed Calm magnesium’s supplement was, yes, a wonderful laxative (the reason I love it so much) but that right there is one of the biggest problems with oral magnesium supplementation.

The tendency for oral magnesium to create a laxative effect, hinders the bodies ability to actually use that magnesium. It just passes through you so fast the body can’t capture and use it.

There is also the whole balancing of calcium and magnesium that gets confusing to those of us who may not have failed, but definitely didn’t grasp chemistry. How am I really supposed to know if I got the right ratio between all my supplements and food? I didn’t study food science either.

This is probably my favorite point made by topical magnesium proponents: Your body will absorb, through the skin, what it needs and not more. Perfect! My body needs magnesium for sure but I don’t want to over do it for fear of “feeding the Lyme”.

The Products-

I was sent Ancient Minerals Magnesium Oil, Gel Plus, and Bath Flakes.

Epsom salt baths have been my stand by on this Lyme journey but I have to say I like the Magnesium Bath Flakes better.

Epsom salt baths relaxed my muscles, I think any bath would, but left my skin a bit irritated. I always had to shower off after a salt bath. Not what I wanted to do since standing up after a bath tends to leave me light headed and out of breath.

I don’t feel the need to shower after the magnesium bath. I feel more relaxed than I ever did after the Epsom salt baths. I can just crawl out of the bath, into my PJs and straight into bed ready to sleep.

So, conclusion- I love the Magnesium Bath Flakes.

The oil and the gel were not as easy to judge. My doctor, who I asked about the products before I tried them, told me the gel would be great for muscle pain.

I don’t suffer from much muscle pain anymore I haven’t for months. Do you ever notice when you say something like that, something happens to prove you wrong? Well, I guess the Lyme heard me and thought, “Oh well, we’ll show you muscle pain”.

Last week I went for a little hike with my husband. I don’t know if that is what threw out my lower back or if I just slept wrong, either way it was miserable. I couldn’t even stand up straight.

I pulled out the magnesium gel. I had my husband lather that stuff all over my lower back.

Did it fix it? No, of course not, it isn’t miracle gel. It did relieve the pain and tension in my back though. I used the spray oil a few times too just to mix it up.

My conclusion on the Magnesium Gel and Oil- I will use it for muscle pain in the future. I understand the function of the gel and oil as a topical supplement but the mineral residue that is left when the product dries is a bit too much for me. The residue is normal. It is recommended that you use the oil 20 minutes before showering, and rinse or wipe off the gel as well. That one extra step plants the Bath Flakes firmly in first place for me.

Here are some of the benefits Ancient Minerals advertises for their products. (Note that these are benefits of magnesium in general.)

  • Restores cellular magnesium levels
  • Natural cellular protectant
  • Facilitates safe and effective detoxification
  • Relief of aches, pains, spasms
  • Elevates mood and relieves stress
  • Encourages healthy skin tissue
  • Helps maintain proper muscle function
  • Boosts energy levels
  • Supports a healthy immune system
  • Balances the hormonal system
  • Calms overactive nerves
  • Improves quality of sleep

Eric’s Story Featured On Novelist’s Lyme Blog

// May 29th, 2010 // No Comments » // Links To Other Lyme Site Posts, LymeBites Blog

Brandilyn Harris, a suspense novelist who has Lyme disease, is currently working on a new novel on Lyme disease and the battles for treatment with this disease.  She has begun a website on Lyme Disease and asked to use my story, and it was featured on the website today.  Check her page out!

Eric\’s Story on Lyme Over The Edge