Archive for Food For Lyme Blog

Lyme Disease Has It’s Good Points Too

// May 31st, 2010 // 4 Comments » // Food For Lyme Blog, LymeBites Blog, Lymenaide Awareness Campaign, May is Lyme Disease Awareness Month

Most of you out there with Lyme disease, or who have heard me complain through the last year of my own Lyme disease are probably thinking “is he having a stroke, or did he really just say that?”  No, I am not having a stroke.  But I am having a stroke of genius.  Okay, not so much genius as at least an idea.

Alyssa Knapp of Food For Lyme wrote an amazing piece tonight on the end of Lyme Disease Awareness Month.  Part of what has been mentioned in the comments to that article is how many new friends we’ve made through this Lyme awareness campaign. 

As much as I hate my Lyme disease, I can’t imagine my life without some of the people that have entered it through the Lyme disease portal.  I never would have been able to meet so many people from all over the world, let alone half the people in my own neighborhood that I’ve met through this campaign. 

And let me tell you, there are some pretty damn amazing people that have worked hard on this campaign, and it is truly a blessing to know them, and to have worked with them.  But more than that, the hundreds and thousands of people who have joined us in spreading awareness.  Most I’ve never met in person, but I love them and depend on them as if they were friends for years.  Part of this disease is isolation.  You cannot begin to understand the isolation someone with Lyme disease feels.  Especially without the support of their own family and friends.  So to be able to come together as a group like this, and feel unending support and understanding of what we go through can be pretty powerful.

So yet another silver lining to the dark cloud that is Lyme disease.  The wonderful people who become part of the community that help to brighten our often dark journeys. 

Alyssa will be guest writing this weekend and including the post I referenced, so please be sure to come back and check it out.  It will bring a tear to your eye and pride to your heart at all that we’ve been able to and how we’ve grown as a community.

My Final Wish for May

// May 31st, 2010 // No Comments » // Food For Lyme Blog, LymeBites Blog, Paint May Lyme Green

As May comes to an end, so does the official end of Lyme Disease Awareness Month. I have seen some very powerful things happen this month. Three years ago I was wandering out in left field wondering if I were the only person in the world with this awful illness….feeling so alone. I have met so many amazing “Lymies” this month. Thanks to everyone’s efforts to change their FB profile pics…for once I could see who was there with me. It has been truly overwhelming. I feel as though I no longer walk alone and that I can stand a little taller. I am proud to be standing side by side with each and every single one of you. Such strong, powerful people you all are. Thank you for the gift of your presence in my life.

I have three final wishes for the end of May and I hope you can accommodate.

1. If you do not have Lyme….please I ask one last time….educate yourself. Learn about Lyme. I do not want you to walk in my shoes….for this is not a journey for the weak. Just take 20 or 30 minutes and go to some of the Lyme blogs, websites or various other sources so you can educate yourself and protect those you love.

2. If someone you know has Lyme and is suffering I ask that you take the time to remember them. It is so easy to get caught up in your life and forget those at home dealing with a chronic illness. A phone call goes a long way. It’s easy to please a Lymie….I bet your friend or loved one would appreciate a walk, an afternoon cup of tea….or if you want to help and don’t know how….ask. Sometimes something as simple as a home cooked meal or an offer to do the vacuuming can make a world of difference. Just knowing that someone still cares and remembers you can be the difference between a good day and a bad day.

3. Lastly….and this is not so much a wish but my own personal thoughts….but I dedicate these last few days of May to all of you suffering with Lyme. You deserve these days…you deserve this month. I want you to know you are not alone…that if even if you feel that way….I am here for you. I give you my hope, I pray for you and I truly believe you will get better and stronger. You do not suffer alone and no longer shall we suffer in silence.

Alyssa Knapp

www.foodforlyme.blogspot.com