Posts Tagged ‘LymeBites’

What A Doctor Should Be – ©Karen Angotti

by Eric Rutulante  •  June 10th, 2010  •  1 Comment »  •  Family of Lyme, Guest Authors, LymeBites Blog, Lymenaide Awareness Campaign

(The following article is copyrighted and being used in it’s entirety with permission from the author). 

Helen Raser’s friend, Karen Angotti, is the mother of a beautiful young woman, Lisa Marie, who has been sick with lyme and co’s for about 20 years. Here is one of Karen’s many beautifully poignant pieces based on her long and difficult journey in the world of Lyme Disease. You may repost this article in its entirety only, please do not excerpt it, per Karen’s request.

WHAT A DOCTOR SHOULD BE
©Karen Angotti

A doctor should be a hero, a knight in shining armor, the sheriff in the white hat. A brave, courageous defender against wanton diseases and virulent pestilences that kill, maim, and destroy. He should be someone who doggedly pursues the enemy without a thought of retreat. Relentless and determined, he fights until the last breath is gasped and the last, faint heart beat is pumped through the struggling body of someone he may not even know. For this is his mission, to fight death and pain, to endeavor to soothe, heal, and relieve. It is a thankless task for death and suffering are as much a certainty as anything in this world. For as soon as one hideous disease demon is squashed with his seemingly pitiful weaponry, another more dreadful and fierce replaces it; and the battle begins anew.

A doctor should be someone who cares more for people than for money or prestige. A doctor who does not care is like an airborne blind pilot who cannot see the runway or read his instruments. All the knowledge in the world will not land that plane without the eyes to see. And likewise all the knowledge in the world will not cure a patient that a doctor blinded by indifference and apathy cannot see is truly ill. For a real doctor will listen to his patients with a heart of concern. He will listen to all his patients not just those who are comely of form, polished, refined, and educated. And adding that working knowledge of the patient to his book knowledge and experience, he will attempt to piece together a treatment that will work. No computer can compete with this ability. For though computers can spit out a diagnosis based on symptoms and then prescribe a standard treatment, no computer has a heart that can see and hear the patient with his own peculiarities and idiosyncracies like a real doctor can. Compassion is at the heart of that indefinable “art of medicine.” Without it, a doctor might as well be replaced by a timesaving, efficient state-of-the-art computer whose memory has less capacity for error than a frail, fallible human mind.

A doctor should be humble realizing that his craft is far from perfected. Medicine is a science that is constantly changing and growing; and the modern “discoveries” of today may soon become the obsolete “discarded failures” of tomorrow. Only a doctor who is humble enough to recognize the gaps in knowledge that exist can begin to have the kind of open mind that considers intriguing, new ideas and possibilities which may become the discoveries of tomorrow. For if one thinks he knows all there is to know, he no longer looks for answers and the three little words, “I don’t know” cannot pass through the sweilling lump of pride in his throat. Pride can construct an impassable roadblock on the path to the future.

A doctor should be someone who enters not a profession but a ministry–someone who is there to serve not to be served. People (even doctors) are not at their best when they are sick and scared. Who would not be irritated by listening to endless complaints all day long year after year? Only someone who realizes that the reason for choosing this calling was to alleviate as many of those complaints as possible. And given the impossibility of curing all of these ailments, the reward must not come totally from the lessening of complaints or the adulation of patients but from the knowledge of a service well rendered. The greatest satisfaction must come from knowing that you have done your best sometimes against seemingly impossible odds. Unraveling an intricate, diagnostic puzzle, using an innovative technique, or maybe simply holding someone’s hand and saying, “I am sorry.” These are the things that make being a doctor worthwhile. These are the intangible things that make the endless complaints, petty annoyances, and invasions of time bearable.

A doctor should be someone who is honest and trustworthy. Qualities that we often ascribe as more necessary for bankers and accountants. But which has more intrinsic value–mere money or an irreplaceable life? Trust is necessary between doctor and patient or a crucial element that may mean the difference between life and death is missing. If a doctor is saying one thing to a patient and writing another in the chart or gossiping about him with other doctors and nurses, then a sacred, unspoken trust has been broken; and the breach may impinge the entire relationship.

A doctor should be someone who is courageous and undaunted by the challenges which he most surely will face. There will always be some in every profession who are dishonest and even evil, those who will use their power for gain no matter how many or who it harms. “All it takes for evil to prevail is for good men to do nothing.” In medicine, perhaps more than any other field, it is imperative that the good men restrain the unsavory. For if they do not, who else will have the necessary knowledge or expertise to do so?

A doctor should be someone who is kind and discreet for ill-spoken words can scar
and maim as surely as a knife. And because these hidden scars are indetectable by any test or examination, they almost always cause a pemanent affliction–most notably a communication rift between doctor and patient that cannot be bridged.

A doctor should be someone who loves what he is doing so much that he would do it even if he were not paid or otherwise compensated. For in this ongoing battle between life and death, God’s most precious creation, Man, must inevitably confront his soul.

To my doctor, Edwin J. Masters, M.D., who showed me that a doctor could be what he should be.
Karen Angotti

Grass Root Support Surprises the ‘Twit’ Right Out Of Us, Thank You For Such A Wonderful Surprise!

by Eric Rutulante  •  June 10th, 2010  •  2 Comments »  •  Lyme PSA, LymeBites Blog, Lymenaide Awareness Campaign

twit pic To begin, let me tell you a bit about Twitter.  According to Wikipedia – Twitter, “is a social networking and microblogging service that enables its users to send and read messages known as tweets. Tweets are text-based posts of up to 140 characters displayed on the author’s profile page and delivered to the author’s subscribers who are known as followers.”

Okay, what does that have to do with anything?  Ashley and I have spoken at great length in our awareness campaigns as to the importance of social networking and media sites in getting our message out.  Look at May.  The simple idea of a campaign for Lyme awareness literally blew up across the country and hundreds then thousands of people joined in.  Do you know how many people became aware in May?  Do you know how many lives were saved because of that awareness?  A great deal of credit has to go to Facebook, Twitter and the other social media outlets for their help in helping us spread our message.

Yesterday we received quite a surprise from Chloe, or in Twitter terms @TVD_Chloe, as she agreed to donate $.05 for each new follower following her on Twitter.  Wow…we were quite taken aback, but not surprised because of the amazing support the fans of The Vampire Diaries have given us since the stars of the show helped out with the PSA’s.

Then suddenly today I saw the following tweet (that’s what they’re called for you non-Twitterers):  @luckytobesilver is donating $.10 to the campaign for every new Twitter follower she gets.

Ashley and I set about to telling people, as we were getting messages on Facebook as people were adding these people on Twitter (and raising money for our awareness campaign at the same time), we suddenly saw another Tweet pop up!  @Christi_Roberts joined forces and is offering $.05 for every new follower.

Ashley and I can’t help but be astounded at this additional boost of support.  It is a huge help to the campaign, and to what we are trying to accomplish.

But then suddenly, I couldn’t leave my computer to go to the bathroom without more people joining onto the cause!!!  People were joining in so quickly (and Twitter kept crashing today, AKA the epis whale fail, also in Twitter lingo) Ashley and I couldn’t even keep up with sharing the information with each other, let alone to keep retweeting it and sharing on Facebook.  It was wonderfl!  But to make this easier, I am simply going to list out all of the following people who are participating in this fundraising project for the Lymenaide and LymeBites awareness projects we are planning.  As this expanded it now includes Twitter and Facebook and regular websites.

Less than half of these people have Lyme.  The others became friends to the Lymenaide/LymeBites awareness cause through the Public Service Announcements that we did as part of Paint May Lyme Green.  Through their new understanding of this terrible disease, they have been prompted to action.

Twitter
@TVD_Chloe is donating $0.05 for every new follower on Twitter from 06/08-06/15
@Christi_Roberts is donating $.05 for every new follower on Twitter from 06/09-06/15
@luckytobesilver is donating $.10 for every new follower on Twitter from 06/08-06/28
@icarusalsoflew is donating $.50 for every new follower on Twitter from 06/09-08/04
@Shannahg22i s donating $.05 for every new follower on Twitter from 06/09-06/20
@CAccolaWeb donated $20.00 today, which was for her donated $.40 for the first 45 people to follow her on Twitter
@lailakhangi is donating .20 euro for every new follower on Twitter from 06/09-06/30 (she is also donating .20 euro to Gulfaide)
@thelymegarden will donate $.06 for every new Twitter follower fro 06/09 until they receive 60 followers (the donation will be split between Lymenaide and CanLyme)

Blogs
Alyssa’s Blog – http://simplyalyssadreaming.blogspot.com -  for every person that subscribes to her blog from 06/09-06/16 she will donate $.05  June 9 and June 16 she will donate .05 cents to the Lymenaide campaign!!

Facebook
The Lyme Garden – Facebook Page will donate $.06 for every new follower of their Facebook page for the first 120 fans (The donation will be split between Lymenaide and CanLyme)
Craig Bancoff – Facebook Page will donate $.50  between 06/10 and 06/17 for every new follower of his Facebook page or new member of his website, you can Register Here for Craig Bancoff\’s Website.  Now in addition, for those who do not know ,Craig “is a musician suffering from chronic, neurologic, late stage Lyme disease and would like to show our support by helping raise money for Lymenaide.”  So beyond the amount he will donate for new followers, but for the same dates if you purchase the digital download of his CD he will donate $5.00 to the campaign!  If you purchase the CD from iTunes or CDBaby he will donate $3.00 for each purchase of the CD.  To get the digital download go here: Craig Bancoff – Merchandise.

And as a show of good sport, I will donate $.10 to the Lymenaide/LymeBites campaign  for the first 200 people to register with the LymeBites website.  Click Here To Register With The LymeBites Website

This is where you come in.  Are you on Twitter yet?  If not, please join and create at Twitter account at www.twitter.com.  Then go into search and enter all of the names above on Twitter and follow them.  Just by doing that you will have raise a lot of needed money for our campaign.  I actually figured out that if you did each of the things listed above you would raise about $7.00 for Lymenaide and LymeBites awareness campaign.  If we get just 500 of our collective followers and readers to actually do all of that, we could raise $3,500 for the awareness campaign without even having so spend a cent!  What could be better than raising money for a worthy cause without spending money?  It just takes a few minutes of your time, and we really need the additional funding to be able to complete our upcoming projects.

If you are already on Twitter then please add the people listed above also.

If you are on Facebook, please go and add the Facebook people for them to donate to the campaign.  And I highly suggest everyone register with Craig Bancoff’s website to also help us out, and while you’re there check out his music…purchase the CD and we will raise even more funds!  In addition please fan our Lymenaide Facebook Page, our LymeBites Facebook Page, our Victorious Vixen website run by our partner in Lyme Nani, and Candice’s Infectiously Optimistic Blog.  All 4 of us can be followed on Twitter and Facebook also.

And to all of these fans of the campaign, as well as those with Lyme who have gotten involved, we thank you so much for your support of this cause, your help in raising awareness and understanding, as well your assistance in raising the much needed funds to continue with our awareness campaigns and save lives.

If you’d like to make a contribution directly to our campaign through a different form of payment, there is a ‘Chip-In’ section in the top right of the LymeBites homepage, you can make a secure donation via PayPal or credit card there.  For other ways to make contributions via checks*, etc., or about sponsoring our awareness projects as well as questions about our campaign please contact Ashley at ashvantol@lymenaide.com or myself at LymeBitesDotCom@yahoo.com for more information.

Together we can continue to build the strength and momentum of our awareness campaign as we prevent another generation of illness.  We can’t let that happen, please help us prevent it!!

P.S. Please check out the montage of all the PSA’s we did that was put together by Chloe to the right of the post.

*Donations made by check to Lymenaide are not subject to any service fees. All other donation avenues; PayPal, Chip-In, Causes have services fees of between 3% – 12%. That money is taken away from your donation and goes to the payment service, and credit card fees. Checks can be made out to Lymenaide and mailed to: Lymenaide – PO BOX 290 -  Tahoe City, CA 96145. Direct payments to Lymenaide are not tax-deductible. The only way to make a tax-deductible donation is through the Lymenaide Awareness Causes Page on facebook sponsored by PANDORA.

Building Awareness

by Ashley van Tol  •  June 4th, 2010  •  No Comments »  •  LymeBites Blog, Lymenaide Awareness Campaign, www.lymenaide.com

We need your help.

We are working on growing the Lymenaide and Lymebites sites so that we can get corporate sponsors, donations and advertisers for the Lyme disease awareness projects we have planned.

We want to be able to get funds from others places so that we don’t have to solely rely on the Lyme Community who have done so much already.

We can’t do this without growing the blogs, facebook pages, twitter accounts and YouTube channel. We have to prove that we are big, important and have a large following in order to be attractive to “corporate” money.

We need your help to make this happen. Please help us grow these sites by encouraging everyone to join and subscribe. This is the biggest thing we can all do right now to make future awareness projects happen AND, best of all, it is free.

If we can’t get the support from the Lyme community, we will never get it from outside the community. Without that support future awareness projects like the PSA campaign can’t happen.

I really want to continue with these efforts but I can’t do it alone. I need your help to reach new people.

I currently have potential projects in the works with both Turn the Corner and PANDORA. They won’t happen if we can’t fund them. Interviews with Celebs who have Lyme, and a short film just to name a few. These are powerful ways to spread awareness but they aren’t cheap or easy to produce.

Please help us grow. This means continually seeking out new people to join our cause. Posting once on your facebook profile or wall isn’t going to be enough. This is a continual part of what needs to be a major part of our awareness efforts.

Facebook-
http://www.facebook.com/pages/Lymenaide/137229171760?ref=ts
http://www.facebook.com/pages/LymeBites-Lyme-Disease-Info-With-A-Bite/122068727823474?ref=ts

Twitter-
http://twitter.com/lymenaide
http://twitter.com/erut10

YouTube-
http://www.youtube.com/user/lymenaide
We have a prize giveaway going on for the next 4 days on the YouTube channel. Subscribe to the channel, watch the videos, and leave a comment telling us which PSA is your favorite and why. Easy!

Blogs-
http://lymenaide.com/
http://lymebites.com/

Thanks so much for all that you have already done to help us bring Lyme disease to the Public Eye and for all that I know you will continue to do. Working together as a united front we can accomplish anything!

Ashley

Welcome to June

by Ashley van Tol  •  June 1st, 2010  •  No Comments »  •  Lyme PSA, Lymenaide Awareness Campaign

by- Ashley van Tol and Eric Rutulante

From Ashley-

This year’s paint May Lyme Green awareness campaign has opened up a lot of doors for us. We have a lot of momentum and we plan to keep it moving.

The first opportunity we have that we would like to act on is interviewing celebrities that have or have had Lyme disease. We already have authors, actors and models who have said they would like to take part in our campaign. I actually had to stop contacting celebrities because so many were interested in helping out. I still have a long list of celebs left to contact. All we need is the funds to make it happen

Another door that opened was to possibly produce a short film about Lyme to submit to a film festival. This would be a story not a documentary.

Of course we also have a handful of other celebs including professional athletes, actors and models who are willing to do more PSAs for us.

In addition to the press kits we are currently sending to TV stations, we will be creating and sending out a slightly different kit with the PSAs to talk shows and other influential people. We predict more doors to open as a result.

Exciting isn’t it! We also have some non-celebrity oriented goals for the coming year. We want to create a brochure that will be made available for anyone to order and send out. The goal is to make this free of charge.

A general awareness kit available as a PDF download is in the works.

AND, a possible summer 2011 tour to cross the country spreading awareness in state and national parks. I can’t think of a more appropriate place to educate the public about Lyme

We also have ideas for fundraisers to help bring in the donations to make these projects possible. Nani, of Victorious Vixen and I are working on some craftivism ideas. We are hoping to get some help from our Vampire Diaries friends on this one. Stay tuned for more information about that.

We need some help to make these projects come to life. Funding is the #1 obstacle we face. We are going to continue to ask for donations, but we also want to attract corporate sponsors. To get sponsors we need to grow our brand.

The “brand” when it comes to our awareness projects is Lymenaide. That encompass the blogs, facebook pages, twitter and YouTube accounts of Lymenaide, Lymebites and Victorious Vixen. We need subscribers, page hits and comments to attract potential sponsors. You can help by visiting, subscribing and sharing these sites and pages with your friends and followers.

Enter Eric-

You’re probably thinking to yourself “but guys, I’ve already donated to the May campaign, now you want more money?”

To answer you, yes. We want you to help us to raise money. The great thing about the awareness we spread in the month of May is that now more and more people know about Lyme disease. It has been leading news stories across the county, it has been on the front page of newspapers… there are a lot more people today on June 1st that know about Lyme disease than there were on May 1st when we kicked off the campaign.

Thanks to so many generous donations throughout the month, we were able to put the gears in motion and because of that get the attention that we needed for more people to know about Lyme disease. As I’ve said, we are like a snowball that is just picking up speed and strength. So now we need to take what we did in the month of May and project it onto a much larger scale. We need people all across the country to think of ways to raise funds to help continue the awareness. We need people to join us in finding people and organizations to sponsor and donate to the cause.

But just as important, we need each of you to continue spreading awareness of this disease. The month of Lyme disease awareness may have ended, but Lyme disease season is in full force. So continue doing the things you did in May to tell people about Lyme disease.

Has your local television station or newspaper done anything on Lyme? If not then contact them and ask them to. You’ll be amazed at how eager they may be to hear your story. And if you can’t tell your story, there’s someone else where you are that will tell theirs. But you need to let the media know that this is important and you want them to cover it.

As you continue spreading the word about this disease, and more and more people who have been impacted by this disease get involved with the campaign and fundraising, then we can continue to ride the wave of momentum we picked up during the month of May.

The one thing all of us involved in Paint May Lyme Green know for sure is that this is one very creative group of people wanting to raise awareness. Now is the time to use that outstanding creativity to come up with fundraising ideas so we can move forward with all we have planned and help save the lives of thousands of people.

If you have any ideas or if you know of anyone you think we should contact about becoming a sponsor, please send an email to- ashvantol@lymenaide.com or erut10@gmail.com.

ATTENTION New Yorkers!!

by Eric Rutulante  •  April 21st, 2010  •  2 Comments »  •  LymeBites Blog, Paint May Lyme Green

What are YOU doing to paint May Lyme green?  As you are aware we are gearing up for Lyme disease awareness month, as well as our ‘Paint May Lyme Green’ awareness campaign. 

Right now I am working on an article about the NY team component of the Paint May Lyme Green campaign, with an update of what we’ve been working on as a group, as well as the work we’ve gotten involved in with many of you.  In addition, so many of you all are doing great things for Lyme awareness month, whether part of the ‘Paint May Lyme Green’ campaign or not. 

As part of my post I want to list some of the great things New Yorkers are doing to spread the word about Lyme diseade awareness, and what creative and interesting ideas people have come up with to gear up for the Paint May Lyme Green campaign, as well as spread Lyme disease awareness from a local to a national level. 

How are you helping out to get ready to Paint May Lyme Green? 

Either email me at LymeBitesDotCom@yahoo.com or leave a comment with the details below for me, and I will include it in my article on what the NY team of Paint May Lyme Green is up to in gearing up for the Paint May Lyme Green awareness campaign. 

Please get any info in as soon as possible as this is set be published in the very near future. 

Thank you!