Archive for Ashley's Blog

Hunger Pains or Lack There Of

by Ashley van Tol  •  September 2nd, 2010  •  5 Comments »  •  Ashley's Blog

I was very proud of myself for remembering to ask my Dr. about putting my pills on a schedule that revolved around two meals instead of three. This was going to make my life so much easier!

I’m really bad about eating. I rarely feel hungry and it is often 11:30am or even 1:00pm before I decide I had better eat. I typically have lunch, dinner and sometimes an evening snack. I still eat plenty and I’m even starting to put on weight again (a good thing in my case).

The doctor’s response was not what I had hoped for.

“Ashley, you can not skip breakfast.”

That wasn’t all…

“You need to eat something protein based every two hours.”

Holy Crap! I’m going to need a personal assistant to make sure I eat all those times!!!

My not being hungry is apparently a mini-malfunction with my system. My brain isn’t getting the message that I need to eat. This makes a lot of sense when I think about it. It is usually symptoms not hunger pains that tell me I need to put food in my belly.

The prospect of eating something every two hours is daunting. What am I going to eat? I can hardly figure that out now and I’m only eating twice a day! First breakfast and second breakfast don’t sound very appealing when you are use to skipping breakfast all together.

I wonder if my Chlorella counts? It says right on the bottle; Chlorella is a natural food. Serve for snacks, dissolve in water for drinks.

Can you imagine your friends reaction if instead of a bowl of nuts or M&Ms you put out a little dish of Chlorella! I don’t even want to think about the reaction to their insides, which presumably are not accustom to the likes of Chlorella.

I have a feeling Chlorella isn’t going to fly with my doctor either. I am going to have to adapt to yet another challenge. I know that it is for the better, even if right now it just seems like a major pain in the @ss.

The Facts of Life

by Ashley van Tol  •  August 30th, 2010  •  1 Comment »  •  Ashley's Blog

For a multitude of reasons being away from home is usually more trouble than it is worth. Going out to dinner or being invited to a friend’s for a meal often feels more of a chore than a treat. Traveling is never simple with fast food and gas stations as your main dining options it’s better to just bring your own.

Right now I am in the San Francisco Bay Area. I come here at least once a month to see my doctor who I love and keep trying to convince to move to Tahoe. He loves the outdoors and skiing. It would be perfect an my life would be so much easier!

Getting to the Bay Area is the first hassle. It’s about a four and a half hour drive. I often have to drive myself because my husband has to work two jobs to not even be able to keep us afloat, poor guy has worked 27 days in a row this month already. When I drive myself I always do fine for the first two or three hours. After that, honestly I shouldn’t be behind the wheel of a car. My cognitive function drops dramatically.

I arrive exhausted and typically get greeted by my 18 month old niece, who I love to pieces, but that means a nap is not an option for Auntie. My family loves me and they understand that I am sick. They do not understand my needs.

Luckily for me I didn’t have to drive myself down this month. Unluckily that means I don’t have a car. I greatly appreciate my grandparents letting me crash on the couch. Their generosity would is astounding, my sister and her daughter also currently live here, as does a cousin who just started at a local college.

So that is two senior citizens, a toddler, a single mother who works ridiculous hours, and a 6′3″ 300 pound teenage football player. The refrigerator is full, but trust me there is nothing for a Lymie to eat in there. I’m not even going to share with you what I have eaten today, you would be horrified!

I am glad I got the ride but it also means an extended stay in the house of chaos. Teenagers go to bed late and grandparents wake up early! I’m scared of dinner, although it can’t be much worse than lunch.

When I have my own car here at least I can go buy my own food. In my grandparents eyes I am still a child who does not know better. Trying to convince them that I don’t eat anything they have would seem as illogical to them as my trying to convince them the sky is green not blue. Facts are facts and according to them their food is fine and healthy for everyone.

Have I mentioned that I can’t drink the water here? There is so much chlorine in it sometimes I breakout in a rash from taking a shower! I gerenally don’t bother taking my pills when I am here either. There is no where to put them, everyone has questions and opinions about what I am taking or should be taking and why am I seeing that quack doctor? I should make an appointment to see their GP, she is wonderful. Right thanks for the advice.

I brush it all off, cast it aside and wish that my brother lived closer. Visiting him is exactly opposite. He loves when I come, I do all the shopping and cooking. He sleeps til 10am too!

On the plus side when I come here I get to see friends. Last night I went dinner with five other amazing women, all Lymies. It was wonderful and makes staying in the house of chaos totally worth it. I also will get to go to my favorite support group meeting tomorrow night and see most of these ladies again and even more friends. Grandma gave me frequent flyers miles to book flights to New York for my husband and I to attend the Turn the Corner Gala in November. I also have to admit that I love seeing my niece, it makes me feel very special that she screams her little head off whenever I leave the room.

I suddenly have this theme song running through my head so I changed the title of the post-

You take the good, you take the bad,
you take them both and there you have
The Facts of Life, the Facts of Life.

And that seems to fit the way I am currently feeling perfectly.

Lyme Beauty

by Ashley van Tol  •  August 4th, 2010  •  No Comments »  •  Ashley's Blog

burt's bees carrot day cremeMy skin can be quite sensitive. Last year I was having a hard time finding body soap and lotion that didn’t bother my skin.

I started using coconut oil instead of lotion. I even used it on my face. It worked really well but it left me super oily.

One day I splurged on a tub of chocolate scented body scrub. The stuff was heavenly! It smelled so good and it didn’t bother my skin at all. The only problem was the price. It cost $15 per tub. A tub was only enough to last me three weeks.

One day I decided I was going to learn to make my own. It is so easy and it does work out cheaper. There are 100’s of “recipes” online.

My favorite part about these scrubs is that they moisturize as well as exfoliate. I have really dry skin but using a scrub like this, I don’t ever need to use body lotion. That is another cost saving point for the scrubs.

Homemade scrubs are a great option for sensitive skin or people with MCS, multiple chemical sensitivities. You can pick your own ingredients based on your sensitivities. Your scrub won’t have any of the harsh ingredients found in most soaps and lotions.

I posted a tutorial for my body scrub on my blog Upcycled by Ash- http://upcycledbyash.blogspot.com/2010/08/homemade-body-scrub-tutorial.html

I love the scrubs, obviously, but there are a lot of other products I have discovered that have made a big difference to my Lyme Beauty Regime.

My other favorite “beauty” products-

Doc Bronner’s Magic Soaps I have actually used these since I was a kid. I love the peppermint all in one soap best. I use it as body soap in the shower and as hand soap in the bathroom and kitchen. I fill a spray or pump bottle half full with water and half with the soap. It is still plenty sudsy and the bottle lasts 2-3 times longer, good value!

Dr Hauschka Shampoo and Conditioner My favorite shampoo and conditioner ever. It isn’t cheap but it is good stuff!  100% solved my dry brittle hair problems.

Burt’s Bees Carrot Day Creme Most face lotions contain too much aloe. My face turns bright red if I use an aloe based lotion. If it isn’t the aloe, it’s the perfume. The Carrot Day Creme is a nice think lotion, it does have a noticeable scent but it isn’t perfumey. As an added bonus the carrot adds some color to my face! The lotion does contain aloe but it is one of the last ingredients.

Tom’s of Maine Calendula Deodorant We had a friend who died of Breast Cancer when she was 26. One thing she asked all of us was to stop using deodorants that contained aluminum. After trying, I don’t even know how many that didn’t do anything, I finally found this one. It works and it doesn’t bother my pits.

BugBand Insect Repellent Bug spray in general makes me gag. It isn’t easy to find a “natural” Deet free option that specifically says it repels ticks,this one does. It still smells strong, but it is essential oils instead of chemicals and synthetic fragrance. You do have to apply it on a regular basis though, it’s magic effects won’t last all evening with just one application.

The next two are very personal products, but someone has to share them-

Weleda Calendula Diaper Care My sister has a baby and this is her favorite diaper creme. I don’t have any kids, but I discovered in a moment of desperation that this stuff works great for feminine dryness/vaginitis. Don’t ask.

Sensuous Beauty Love Balm Forget irritating petroleum based KY Jelly. Love Balm is sooooo much better!

OK, now I’m a little embarrassed but I’ll survive.

None of these products or brands have paid me, sent me samples or asked me to do a review. I just wanted to share with you some of the products that have made my sensitive life a little better. That said, just because these products work for me does not mean they will necessarily work for everyone. Make sure to read the labels to check for allergens and take it slow when introducing new beauty products to sensitive bodies.

What are some of the best products you have found that work for your sensitive selves?

Life Lessons Learned

by Ashley van Tol  •  July 29th, 2010  •  7 Comments »  •  Ashley's Blog

Finding Self

“I couldn’t live with myself any longer. And this question arose without an answer:
who is the ‘I’ that cannot live with the self? What is the self?”

-Eckhart Tolle

I use to go to a Lyme disease support group once a month. I really enjoyed the group. It was there that I met Alix and Kim from SpiroChicks and Scott Forsgren, the Better Health Guy, as well as a myriad of other Lymies who I felt a camaraderie with.

Over the winter I moved and I hadn’t been able to make it to a meeting again until this past Tuesday.

The topic was the Mind-Body Connection. One of the ladies in the group had read the book Mindsight by Daniel Siegel.

Siegel combines Western neuroscience with Eastern meditation in an exciting exploration of how a troubled mind can right itself. Drawing on current science and case studies, Siegel, a clinical professor of psychiatry at UCLA School of Medicine, reinforces the idea that the power of reflection allows us to approach, rather than withdraw, from whatever life brings us.

The book itself sounded interesting. I have read about how stress and distress can make you physically ill. This is one of the things I explored with a psychotherapist before I was diagnosed with Lyme. She agreed it was an important aspect but she knew that there was more to my illness than just this. Gotta love the shrink who tells you, “You are sick, but it is not all in your head”.

It was the discussion that was opened up by the topic that had a profound effect on me though. The Self and the importance of Clan to your healing.

I was stunned by the realization that I give no time to my “Self” and I don’t have a Clan.

The Self-

You may call this the spirit or soul, to me it feels right to call it the Self. What is the Self? This is the true you. The brain is an organ and the body is a vessel but neither is who you are.

Where does the Self exist? I have no idea. To be honest the whole idea is more than I can really comprehend. It is like the question, “Where does the Universe end?”. You know that the universe doesn’t end; it is everywhere and forever. At the same time you can’t really visualize that as reality.

Some people believe that the Self exists in the heart center. This feels right to me. Not only does it feel right, but feeling this makes me feel more grounded. I spend a lot of time living in my head. Living in that state makes me feel disassociated from my body, or maybe it is more than that, I am disassociated from my Self.

I am always trying to work things out, to figure and to fix. I rarely if ever take the time to just be and to accept.

You are probably asking what in the world this has to do with my health. By letting go of the frantic workings of my mind; the worries, the fears, the obligations… If I can just stop, just be, I feel myself relax, my mind becomes calm. The stress and the worry melt away. Miraculously things become clearer, my mind can function better. There is no doubt that this is a much better, much healthier state to be in. I need to learn to connect with and respect my Self.

Clan-

I have a lot of friends… on facebook. I have a good family, we all care about one another.

This is not the same as having a “Clan”. A true clan is having people you can depend on, who understand you and accept you. People you can open up to and really share your life and your feelings with. A Clan is more than just a few people, a Clan is a large functioning social network. The Clan needs to include people who exist physically in your life, not just online.

To be honest, I don’t know if I have ever had this in my whole life. Sadly I have always prided myself on not needing anyone. I thought I was strong. Now I can see that “strength” was actually fear and my pride was a wall to keep me from getting hurt. I realized this Tuesday night when the LLMD who facilitates the group told us to ask for answers from our hearts not our heads.

As we continued to talk about Clan, aura and energy came up. Recognizing the people in your life who fill you up and those who are toxic. We need to surround ourselves with people who give us energy and to avoid those who steal it.

This is a really hard realization to face. What do you do when you know without a doubt that your relationship with best friend or your family members are toxic? Can you really give up those relationships?

I remained completely open as the meeting went on , but I was a little in shock. I have some major things in my life that I need to work on. Pills and potions aren’t going to cure me alone. I need to take an active role in my healing. I thought I was but now I realize I was going about it all wrong.

I’m often commended for my positive outlook and for not letting this disease or life get me down. It’s true, I don’t, another thing I have always been proud of. Unfortunately what I realize now is that even here I am hiding behind that wall. Fooling everyone including myself. My attitude has come more from avoidance than truth.

So what do I do now? I am “little girl lost”, I don’t know my Self and I don’t have a Clan.

Finding Self, I know how to do. Sticking with it is the hard part. I’ve had glimpses of my Self in the past. Sometimes the truths there are hard to accept. Perhaps that is why I have always given over to my mind which has allowed me to avoid the realities of accepting what my Self has to say.

As for finding a Clan, I have no idea where to start. I don’t work and I’m currently not the active person I use to be. Where am I supposed to find these Clan members? And then there is the fear of not being accepted. This is an issue that stems from my childhood and teen years. Suffice it to say, kids can be mean. You know that elementary school comeback “I’m rubber, you’re glue, what ever you say bounces of me and sticks to you”? I never had that rubber armor. I was just glue. Everything rubber said stuck to me and added to that wall.

I am determined to break down my wall. I can see how it is negatively affecting my life. I can also see how much fuller my life could be without it and how that in turn would positively affect my health.

Udi’s Gluten Free Sweet Treats

by Ashley van Tol  •  July 27th, 2010  •  2 Comments »  •  Ashley's Blog

Lemon Streusel Muffins

I recently had the opportunity to sample Udi’s Gluten Free Foods line of muffins and cinnamon rolls. Muffins are one of the foods I’ve missed most with my gluten free diet so this was quite a treat!

Saturday morning my husband and I made up a platter of muffins a frosted cinnamon roll and mugs of Teeccino (a caffeine-free coffee alternative). It was a warm sunny day so we decided to take our amazing breakfast outside.

I realize not all Lymies eat sugar, but many do. I hardly at any sugars for the first year of my treatment. My biggest treat was a couple a squares of 85% dark chocolate. When my digestive issues got under control I did started eating sugars again, but I am careful about moderation. If I overdo it, I pay for it!

Udi’s products are gluten free, dairy free, soy free and nut free.

What we tried-

  • Lemon Streusel Muffins
  • Blueberry Muffins
  • Double Chocolate Muffins
  • Cinnamon Rolls

It was quite a satisfying breakfast. It felt so novel to be eating muffins after going so long without them. So many gluten free products look good but fail on texture and taste. Not so with these products.

What we thought-

All the products look and feel like the real deal. I highly doubt anyone would even know that they were gluten free. My dad came to visit before we finished all the cinnamon rolls. He hates all my gluten free foods and never holds back from telling me how terrible they taste. I didn’t tell him the cinnamon rolls were gluten free and he didn’t notice anything suspect about the taste.

My husband and I both agreed that the Double Chocolate Muffin was the best. It had the best flavor and the texture was the best of all the products. The chocolate chips throughout really make these great muffins.

My second favorite was the Blueberry Muffin. Like most blueberry muffins, I wish it had more blueberries, I like a lot of berries! My husband’s second favorite was the Lemon Streusel Muffin. He thought it had better flavor than the blueberry muffin. I agree that it had more flavor but for me it was too lemony. Both muffins had good texture but it wasn’t quite as good as the Double Chocolate Muffin.

The Cinnamon Rolls are yummy too. They aren’t as ewie gooey as fresh cinnamon rolls but the texture is good and the frosting adds a super cinnamony taste. I love cinnamon so this was perfect for me, my husband thought it was a little too much cinnamon flavor

None of the products taste like a sorry excuse for their gluten counterparts. They are all good when it comes to taste and texture.

Platter of Yummy!

You can find Udi’s products at Whole Foods Market and at many Natural/Health Foods stores. Some larger supermarkets do carry the products. You can also order Udi’s online from their website- http://udisglutenfree.com/products

If you are interested in Teeccino, the herbal coffee alternative I mentioned, here is the link to their website- http://www.teeccino.com/