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Original post about this symposium: http://lymebites.com/a-forum-on-tick-borne-diseases-whats-next/Itinerary:Schedule ~ Please note that all times are approximateArthur Zankel Music Center9:00 Morning Session Opens Christina T. Fisk, Co-Chair Organizing CommitteeWelcome to LymeNEXT Congressman Chris Gibson, 20th Congressional District, NY9:15 Keynote AddressInto the Woods: The Patient Journey through Lyme DiseasePamela Weintraub, Executive Editor, Discover Magazine and author of Cure Unknown: Inside the Lyme Epidemic10:00 The Scope and Economic Burden of Lyme DiseaseAn Epidemic of Lyme Disease? Holly AhernThe Economic Impact and Burden of Lyme Disease Lorraine Johnson11:00 Break11:15 A Diagnosis that Fits the Disease – Multiple Chronic Infectious Disease Syndrome (MCIDS) Richard I. Horowitz, MDNoon Lunch BreakAn optional one-price ($10) dining option is available for Forum attendees. Lunch will be held in the Murray-Aikins Dining Hall on the Skidmore Campus. See program for menu.1:20 Afternoon Session Opens Christina T. Fisk, Co-Chair Organizing Committee1:30 Protecting Physicians who Treat Lyme Disease Daniel Cameron, MD2:00 Preventing Transfusion-Transmitted Babesiosis David Leiby, PhD2:30 Break2:45 New Methods for Lyme and TBD Detection Ahmed Kilani, PhD3:15 A “Manhattan Project” for Lyme Disease Kenneth Liegner, MD4:00 Closing Remarks Congressman Chris GibsonA Forum on Tick-Borne Diseases – What’s NEXT?Skidmore College Saratoga Springs, New YorkMay 21, 2012Honorary Chairman: Congressman Chris Gibson
LIVE VIDEO STREAMINGHonorary Chairman Congressman Chris Gibson (NY-20) and the LymeNext Organizing Committee invite all individuals, communities, organizations, or enterprises with interests pertaining to Lyme disease and other tick-borne diseases to join the Congressman for a unique public forum he will be hosting in the Zankel Music Center, Skidmore College in Saratoga Springs, New York, on May 21, 2012 from 8:00 am to 5:00pm.
The Lyme Next Forum will be broadcast live over the Internet this Monday starting at 9:00 am. The website you need to go to is:A link to this and detailed information is also available at the Lyme Forum website:
May is Lyme Disease Awareness month. If you’ve not yet seen it, please view UNDER OUR SKIN. This documentary shows the truth about Lyme disease. See it, recommend it, pass along your copy! You can also view the public service announcements linked to our website. Very informative. And we are still taking Messages of Hope. To submit yours, please contact firstname.lastname@example.org.
Thanks to so many people for your wonderful messages of hope and for your enthusiasm for the LymeBites Messages of Hope video. While we were intending to roll it out today, we’ve had some unforeseen issues arise and will have to delay the launch briefly. Thank you for your patience. In the meantime, if anyone has any messages they would like to add, please send them to email@example.com! Thank you.
Ginger and the LymeBites Team
May is Lyme Disease Awareness month and on May 7th, LymeBites will be unveiling Messages of Hope,
a video of inspiration for those suffering with this disease.
Please join us in this collaboration by submitting your own written message of hope to show
your support and share your strength. If you are comfortable, please
include your name (or initials or nickname-whatever is your
preference) and at least a general location.
Submissions are due by Friday, May 4th. For any questions and to submit your
message of hope, please contact Ginger Schwartz at
All submitted written Messages of Hope will be published on May 7th along
with the video.
Thank you for helping to get the
word out and showing your support for the Lyme community!
A Forum on Tick-Borne Diseases – What’s NEXT?
Skidmore College Saratoga Springs, New York May 21, 2012
Honorary Chairman: Congressman Chris Gibson
Please forward this invitation (4/6/12)
A Special Invitation
Congressman Chris Gibson (NY-20) invites all individuals, communities, organizations, or enterprises with interests pertaining to Lyme disease and other tick-borne diseases to join him for a unique public forum he will be hosting in the Zankel Music Center, Skidmore College in Saratoga Springs, New York, on May 21, 2012 from 8:00 am to 5:00pm.
The event, entitled A Forum on Tick-Borne Diseases – What’s NEXT? seeks to focus public awareness on the future of these difficult diseases. A group of speakers, leaders in their fields, will present forward thinking, problem-solving proposals to a panel of policymakers from both private and public sectors about what can reasonably happen NEXT to advance the cause of improving the lives of people suffering with Lyme disease and other TBDs.
Pamela Weintraub, renowned author of Cure Unknown, and Executive Editor of Discover, will be the keynote speaker for this event. Pam will speak to the multi-dimensional nature of this extraordinary subject, from the patients to the politics, from the science to suppositions that define this stunning medical debacle.
Dr. Richard Horowitz, internationally renowned clinical physician and consultant in the field of Lyme and tick-borne diseases has been working with patients for over twenty years. He has seen the evolution of the diseases from the clinical perspective, and will present a proposal for a paradigm-shifting approach to the diseases that could encourage new perspectives, new synergies, and new research in this difficult subject.
Dr. Daniel Cameron, former President of the International Lyme and Associated Diseases Society, an active clinical physician, researcher, and vocal advocate for Lyme patients and improved Lyme policy in the U.S., Dr. Cameron will speak to the extreme difficulties the current medico-political environment imposes on the doctors who aggressively treat Lyme disease.
Dr. Kenneth Liegner, Dr. Liegner is a Board Certified Internist with additional training in Pathology and Critical Care Medicine, practicing in Pawling, New York. He has been actively involved in diagnosis and treatment of Lyme disease and related disorders since 1988. Dr. Liegner will present his ideas for a comprehensive plan for dealing with the spectrum of problems that are the “Lyme issue” as we move into the future.
Lorraine Johnson, J.D., MBA, one of the best known and most highly regarded advocates for Lyme patients, is an attorney advocate on issues related to the medico-legal and ethical aspects of Lyme disease and has published over 30 peer-reviewed articles on this topic. She is the Chief Executive Officer of LymeDisease.org, and is a director and an officer of the International Lyme and Associated Diseases Society. She will speak on the Burden of Illness, an in-depth study of what the costs are to people who have Lyme and other tick-borne diseases and to their communities, and she will recommend research paths forward to address these issues. Lorraine authors the Lyme Policy Wonk blog, on the lymedisease.org site.
Holly Ahern, associate professor of Microbiology at SUNY Adirondack, will present the findings of her 2011 research study on the number of cases of Lyme disease that go uncounted in our “official” statistics. Most cases of Lyme disease are NOT reported, and this number of “invisible” cases, will ultimately have a significant impact on all our communities. Multiplying the “undocumented” cases with the financial burdens of the disease foreshadows a public health crisis on the horizon.
Dr. Ahmed Kilani, President, Founder, and Director of Clongen Labs, will discuss new laboratory methods to enhance the detection sensitivity ini the testing process.
Dr. David Leiby, Head of Transmissable Diseases at the Red Cross, will speak on the concerning and challenging issue of Babesiosis now being found in the blood supply.
Dr. Edward Breitschwerdt, DVM, of North Carolina State University, will address the emerging challenges of Bartonella, one of the co-infections that is being observed with increasing frequency.
Lyme victims, their families and friends, advocacy groups, medical professionals, business professionals, government agencies, policy makers, and others associated with these diseases or their impact on people are urged to attend to both hear what the speakers are proposing as well as to demonstrate to the public, to government, and to the media that there are a LOT of victims of tick-borne diseases.
There is no cost to attend the forum. Information about how to pre-register and about accommodations can be found at www.lymenext.org.